I have at this point been on steroids for about 1.5 years in total, resulting in my developing steroid-induced Cushings syndrome which has meant that I’ve suddenly put a lot of weight on. 

Over the last year, my body has been through so much and it’s struggling to keep up with itself. 

I continue to be tried on various biologics, including infliximab, which I sadly became allergic to. My allergies have definitely worsened, and I now carry an epi-pen because we just never know what’s going to set them off. I am awaiting follow-up with the allergy clinic about urticaria, but it’s a slow game trying to get diagnosed and a proper treatment plan in place. 

I also had a DEXA scan this year, which has highlighted how the steroids have damaged my bones, so I’m having to be more careful to try and treat them.